Sidelines National Support Network  / Resources  / Preemie Resources

Newborn Screenings

• Newborn Screening By PerkinElmer Genetics.
  Information on metabolic and hearing screening for newborns.
• Newborn Screening For Your Baby!
  What you need to know about a simple blood test (Newborn Metabolic Screening) that can detect more than 50 genetic disorders in your baby.
 

• Pediatrix SoundGene Screening  Panel
  Information on this specialized test for the most common causes of hearing loss.
• Early Hearing Detection Program
  Information on early hearing detection screenings from the The Centers for Disease Control and Prevention (CDC) EHDI program including state by state listings.
• National Newborn Screening and Genetics Resource Center
  Information and resources in the area of newborn screening and genetics.

Preemie Resources

• PREEMIE-L
  Homepage for the preemie mailing list
• Newborns in Need, Inc.
  6078 Lundy Road
  Houston, MO 65483-2226
  (417) 967-2589
  FAX (417) 967-4205
  info@newbornsinneed.org
• Parenting Preemies
  Was your baby born prematurely? Discuss the special challenges and joys of parenting a preemie.
• Preemies.org
  Preemies.Org was established to help parents of premature infants find other parents using various Internet resource.
• PreemieTwins.com
  Preemie Twins has resource for both parents of premature infants and parents of multiples.
 

Books

Born Too Soon
by Elizabeth Mehren

Every year 275,000 preterm babies are born in the United States. Emily Eaton Butterfield arrived 15 weeks early, weighing one pound eleven ounces. Active and alert, Emily fought to live but developed necrotizing enterocolitis (NEC) that destroyed her intestines. She lived 53 days. This moving story written by Emily's mother shows that courage can come in very small packages.

Parenting Your Premature Baby and Child: The Emotional Journey
by Deborah L., PhD. Davis, Mara Tesler Stein, Mara Tesler Stein

An excellent, complete source of information including a section for fathers of premature babies.

Preemies : The Essential Guide for Parents of Premature Babies
by Dana Wechsler Linden, Emma Trenti Paroli, Mia Wechsler Doron M.D

Linden and Paroli, mothers who met in the hospital when their preemies were born, and neonatologist Doron present a comprehensive guidebook for parents whose babies are born prematurely.

Your Premature Baby and Child: Helpful Answers and Advice for Parents
by Dianne I. Maroney, Judy C. Bernbaum (R.N.), Jessie Groothuis (Editor), Amy E. Tracy (Editor)

A comprehensive guide for the parents of "preemies"-from homecoming to the school years.

Preemie Parents
by Tami Gaines

This book teaches parents how to transform the difficult realities of their baby’s intensive care stay, into one full of opportunities for tremendous personal growth

Preemie Clothes

• Melinda's Patterns
  http://members.aol.com/GORLEY/patterns.html
• Peeny Weeny Baby (UK)
  www.peenyweeny.co.uk
  Quaity items for babies based in the UK. They ship to the US and worldwide.
  Peeny Weeny Baby
  PO Box 71
  Shanklin
  PO37 6ZW
  UK
  Tel/Fax: +441983 863532
  Mobile: +447973 362955
  email: info@peenyweeny.co.uk
• TLC Clothing Company
  P.O. Box 245
  Hunt Valley, MD 21030-0245
  (410) 876-9071
  1-800-755-4852
  tlcbaby@cct.infi.net