Sidelines National Support Network  / Resources  / Preemie Resources

Newborn Screenings

• Newborn Screening By PerkinElmer Genetics.
  Information on metabolic and hearing screening for newborns.
• Newborn Screening For Your Baby!
  What you need to know about a simple blood test (Newborn Metabolic Screening) that can detect more than 50 genetic disorders in your baby.
• Newborn Hearing Screening And Your Baby!
  Three out of every 1000 babies has some form of hearing loss. Find out how to get your baby tested.
• Early Hearing Detection Program
  Information on early hearing detection screenings from the The Centers for Disease Control and Prevention (CDC) EHDI program including state by state listings.
• National Newborn Screening and Genetics Resource Center
  Information and resources in the area of newborn screening and genetics.

Preemie Resources

• Pediatrix Medical Group, Inc.
  The nations leading provider of newborn, maternal-fetal and pediatric physician subspecialty services. Founded in 1979, its neonatal physicians provide services at more than 240 NICUs, and through Obstetrix, its perinatal physicians provide services in many markets where Pediatrixs neonatal physicians practice. Pediatrix is also the nations largest provider of newborn hearing screening. Educational resources are available at www.pediatrix.com/parents.
• PREEMIE-L
  Homepage for the preemie mailing list
• So You Know Someone Who’s Had A Preemmature Baby?
  Practical advice from Preemie-l – a discussion group of parents of preemie babies 
• Premature Baby/Premature Child
  A complete site of support from the NICU through raising your premature baby.
• The Alexis Foundation
  Their mission is to assist parents, healthcare professionals and the public in providing the best possible care for premature infants and children.
• The Angel Quilt Project
  The Angel Quilt Project (AQP), formerly known as The Angel Afghan Project, founded 27 January 2000, is a group of stitchers dedicated to stitching center panels to be finished into quilts. The completed pieces are then donated to hospitals all over the world. They send to NICU’s, Childrens Cancer Clinics and Regional Burn Centers for Children under 10 years of age.
• Newborns in Need, Inc.
  6078 Lundy Road
  Houston, MO 65483-2226
  (417) 967-2589
  FAX (417) 967-4205
  [email protected]
• Parenting Preemies
  Was your baby born prematurely? Discuss the special challenges and joys of parenting a preemie.
• Preemies.org
  Preemies.Org was established to help parents of premature infants find other parents using various Internet resource.
• PreemieTwins.com
  Preemie Twins has resource for both parents of premature infants and parents of multiples.
• Pumping Moms
  A site with associated on-line discussion group for women who are pumping breast milk for their babies in the NICU.
• A Place To Remember
  A Place To Remember offers several different specialty items related to bedrest, problem pregnancy, NICU care, or premature infants.
  You can also contact them for matierials or a catalog:
  A Place To Remember
  1885 University Avenue
  Suite 110
  Saint Paul, MN USA 55104
  Toll-free 1-800-631-0973 or 651-645-7045
  FAX 651-645-4780

Books

 
Born Too Soon
by Elizabeth Mehren

Every year 275,000 preterm babies are born in the United States. Emily Eaton Butterfield arrived 15 weeks early, weighing one pound eleven ounces. Active and alert, Emily fought to live but developed necrotizing enterocolitis (NEC) that destroyed her intestines. She lived 53 days. This moving story written by Emily’s mother shows that courage can come in very small packages.

Parenting Your Premature Baby and Child: The Emotional Journey
by Deborah L., PhD. Davis, Mara Tesler Stein, Mara Tesler Stein

An excellent, complete source of information including a section for fathers of premature babies.

Preemies : The Essential Guide for Parents of Premature Babies
by Dana Wechsler Linden, Emma Trenti Paroli, Mia Wechsler Doron M.D

Linden and Paroli, mothers who met in the hospital when their preemies were born, and neonatologist Doron present a comprehensive guidebook for parents whose babies are born prematurely.

Your Premature Baby and Child: Helpful Answers and Advice for Parents
by Dianne I. Maroney, Judy C. Bernbaum (R.N.), Jessie Groothuis (Editor), Amy E. Tracy (Editor)

A comprehensive guide for the parents of “preemies”-from homecoming to the school years.

Preemie Parents
by Tami Gaines

This book teaches parents how to transform the difficult realities of their baby’s intensive care stay, into one full of opportunities for tremendous personal growth

Preemie Clothes

• For a Special Baby Preemie Clothes
  c/o Pat Cotter
  1682 Roxanna Lane
  New Brighton, MN 55112
  [email protected]
  http://www.preemie-clothes.com/
• Melinda’s Patterns
  http://members.aol.com/GORLEY/patterns.html
• Peeny Weeny Baby (UK)
  www.peenyweeny.co.uk
  Quaity items for babies based in the UK. They ship to the US and worldwide.
  Peeny Weeny Baby
  PO Box 71
  Shanklin
  PO37 6ZW
  UK
  Tel/Fax: +441983 863532
  Mobile: +447973 362955
  email: [email protected]
• Preemies R Us
  http://http://www.preemiesrus.com/catalog/
• Tiny Little Clothes, Inc.
  (800) 515-0112
  [email protected]
  http://www.tinylittleclothes.com
• TLC Clothing Company
  P.O. Box 245
  Hunt Valley, MD 21030-0245
  (410) 876-9071
  1-800-755-4852
  [email protected]
• Wee Angel Wear
  http://www.weeangelwear.com
  [email protected]
  1-866-premie-1 (1-866-773-6431)
  Wee Angel Wear is designed with adjustable elastic holders. These holders prevent lead wires from dislodging and setting off alarms, especially when the baby is held. A front opening panel flap allows wires attached to the upper torso to exit the sides of the sleeper rather than out of the middle front or neck of the sleeper. Cuff openings allow access to upper extremities for checking IV sites easily. Crotch openings allow access to lower extremities.